{"id":14394,"date":"2023-11-14T06:46:00","date_gmt":"2023-11-14T06:46:00","guid":{"rendered":"https:\/\/www.humanists.org\/blog\/?p=14394"},"modified":"2023-11-28T01:18:17","modified_gmt":"2023-11-28T01:18:17","slug":"2023-11-19","status":"publish","type":"post","link":"https:\/\/www.humanists.org\/blog\/2023-11-19\/","title":{"rendered":"Bioethics Past and Present"},"content":{"rendered":"\n
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Rafa Escandon<\/figcaption><\/figure><\/div>\n\n\n

Rafa Escandon<\/h3>\n

11 a.m., November 19, 2023<\/strong><\/p>\n

Hear Rafa Escandon in Mountain View, where he will discuss and answer questions online, OR join us on Zoom yourself.<\/p>\n

Bioethics (or Medical Ethics) has emerged and developed rapidly as an independent (but interdependent) discipline from standard ethics since WWII. While the Nazi doctors trial and atrocities brought to light many previously unthinkable transgressions, a developing discipline actually pre-dated the Nazi regime with respect to protections of human subjects in research. The late 20th and 21st centuries have brought rapid and significant development in the understanding of biology, genetic engineering and therapeutics. Each of these areas (and many others) if not carefully considered, can impact our functioning as a civil society. Some examples of past, present and potential future cases will be presented for a (hopefully) robust and interactive discussion.<\/p>\n

Rafael (Rafa) Escandon is currently a consultant for research ethics and clinical research and development to the biotechnology industry. Most recently he was the senior vice president of medical affairs, policy, and patient engagement at BridgeBio Gene Therapy and has worked in global clinical research and development and patient advocacy for nearly 30 years. Rafa’s approach is to be highly considerate of the ethical implications of conducting and participating in clinical research, especially in rare diseases and in vulnerable and developing-world populations. He serves as adjunct faculty in the Department of Medical Ethics at the New York University Grossman School of Medicine, as well as at the Children\u2019s Mercy Kansas City\/UMKC School of Medicine Pediatric Bioethics Center. He was also previously adjunct faculty at the University of California Berkeley’s Clinical Research Management Program and as an educator in human rights and justice.<\/p>\n